Going to Salt Lake

Just thought I'd write a quick update. We have been off and on about wanting to go down to Primary Children's, but we finally decided to go for sure this morning. Xavier has been having a hard time getting his medicine down the last few days, with it slowly worsening all the time. It seems like he is having a hard time swallowing. He has had a cold, too, and so at first we weren't positive whether it was just that bugging him or something else. It has become apparent, though, that more than just a cold is giving him trouble. We know the swallowing problem is from the excess fluid in his poor little head. Our doctor in Blackfoot advised us that as more fluid builds up, the more strain it puts on his brain stem which controlls his basic functions of swallowing, sucking, breathing, etc. We've occasionally noticed problems in these areas from time to time, especially if for some reason, he's behind on his meds, but things have been declining gradually for a week or so. We called our local clinic this morning, and when they said they c0uldn't do any more for him, we prayed about it, and finally decided to see what the specialists down at PCMC would do or say. We know, of course, that anything they do won't be a permanent fix, but hopefully they can help him be as comfortable as possible for the time being. Please pray for us. Please especially pray for our little guy!