Back already!

Our stay at PCMC went well. We got back about 8:30 last night. They want to do a surgery to relief the extra pressure in his head, but Xavier has a couple of infections right now, one in his bloodstream, and one in his urinary tract, so they want to get that cleared up before they proceed. That's why we came home, to wait it out. He seems to be feeling better for the moment. At times, he even seems like his former healthy self! He can drink his bottle now, which he didn't feel well enough to do much of for a few days. That's a big relief!! They switched his pain and anti-seizure medicines, and they seem to be working better. The poor little guy has about 8 medications now, 5 of which he will take regularly. One is his antibiotic, too, so he'll hopfully soon be over taking that one. The others are "just in case" pain meds. Whew!! How much medicine can one little guy take!! We left the feeding tube in him, so in the event he doesn't feel well enough again to eat, we'll at least be able to give him the meds he so very much needs. As far as the surgery, it should be relatively minor, with great results for him. He will be much more comfortable. Let's hope he can stay with us long enough to enjoy the reults of it, if that's Heavenly Father's plan for him.

We're having the Creekside hospice agency come in and help us with him, and so far they've been wonderful! They will help us with his meds, as well as diapers and wipes, along with a great variety of other helpful services. I am so glad we chose to let them help us. They just started today.

In other news, TJ started his online math class. He's going through CSI. It seems to be going well so far! I am so proud of him!

To close today's latest, I want to show you this ADORABLE!!!!! picture we got of our guy. I've wanted to get a picture of one of his angelic little smiles for a long time, but have never succeeded. That is, until now!! TJ took this in the hospital yesterday, as we were getting ready to go home. Have you ever seen anything so sweet?!